When the unknown strikes

I have to say life has been pretty good! 

I finally feel pretty good most of the time! AMEN! I still get a rash that really itches from chemo. I also have a cough that just won't go away...ugh. All in all I am happy and enjoy days going to school and  playing with friends.

Then...

Right before Easter break I started to lose my hair again. On no, I was so worried. It is finally past my shoulders. Clumps in the tub...clumps in the bed...clumps in the brush. It was everywhere. It has slowed down a bit for now. My mom and dad asked my doctor what is going on and she said it sometimes happens. However usually it only thins! What a relief!! For now I am hanging on to my hair! 

On the positive side, I am going on my Make A Wish trip this month!!!

DisneyWorld here I come.

On the downside I have two treatments this month :(

But...

Only one in May and One in June!

THEN I AM DONE!

 Wow it feels great to say/write that!

New pictures to share!

4 more cycles to go!

The count down begins!

 I am so excited that I can actually count how many treatment cycles I have left on one hand!! This last Friday I had my second to last LP (lumbar puncture) where the doctors sedate me and put Methotrexate in my spinal fluid to help prevent a relapse in my central nervous system. The procedure went smooth. Then I saw Dr. Baskin, she said my counts are great! So now I am on a 5 day course of high dose steroids. The steroids are one of the hardest parts of my treatment. 

This last month I had a few trips to the ER to get IV antibiotics from high fevers. Then a trip to CHLA because of a positive bacterial infection test. (that ended up being a contaminated sample) This last month was a lot more pokes than usual.

So my Make a Wish has been granted!! I am headed to Disney World in April!! I can't hardly wait to see all the princesses! I love them all. Big things are happening around here. When my treatment is all done I am having a big party on the beach to celebrate. Two years of chemo hasn't been easy, but I have been fighting my way thru it. Thank you everyone that prays for me. 

Now for some fun....

Here are some current pictures!

Last Fridays Treatment

Daddy Daughter Dance


Last month trip to CHLA
New years with my Friend
Me as a Bon Bon in the nutcracker
Ballet practice
My brother and I
In the hospital again
My Kodi

LTN 2015 schedule!

What: Light the Night Walk
Where: Cal State Bakersfield Amphitheater off of Stockdale Hwy
When: Saturday, November 7th, 2015
Time: Registration opens at 4:00 PM
Free parking in lots B&C, Disabled Parking in lot D
No Pets Allowed
Bring lawn chairs and blankets

Light the Night Schedule of Events:
4PM- Registration Opens
4PM-6:30- Festivities begin including: live music, photo booth, food, team photos, Survivor Café, Kids Zone and more!
5:00- Acknowledgement of Top Teams, Sponsors and Bright Lights
5:45- Remembrance Ceremony
6:30- Main program followed by the walk and fireworks display

We look forward to seeing you there!

The countdown!

This Saturday is the Light the Night Walk!!! Very excited to see everyone! All of your support is truly amazing. I can't tell you all how special everyone of you are to me and my family! 

Halloween just passed and I was Pocahontas. I love dress up and candy so this was a awesome holiday. Next Thusday I return to CHLA for another round of IV chemotherapy. I am SUPER happy about this... Why? Because I only have 7 more "IV" treatments left after this one and 2 more Lumbar Punctures to put chemotherapy into my spinal fluid. I do still take pill therapy at home everyday too. 

However this seems so close and so exciting!

My very last chemo will be.....

I have been trucking along in therapy. My hair has grown back to my shoulders. I have some cute curls that are from the chemotherapy. I started Kindergarten this year! I love my new friends and school! I still go thru sooo many challenges from treatment. I have neuropathy in my feet and hands, jaw pain, fevers, weakness, a sour stomach everyday, and many more things. All in all I have to say I'm doing good! I am still in remission and traveling back and forth to Children's Hospital of Los Angeles for therapy. I recently got really exciting news... My very last day of therapy will be June 26th!! Finally a light at the end of the tunnel! Even after therapy ends I still have a long road of recovery. Thank God I have a great place to get treated at. Here are some pictures of what I have been up to 😊

The counts are all that matters!

I started month 5 of maintenance on Friday. It's the same medication for the next two years... month after month... just boring Leukemia to DEATH over here. In this phase my "counts" (for those who don't know what my counts are... They are my CBC labs that tell the doctors what immune system is doing as well as my red and white cells.) have not been great. First they are to low so, I had to stay at home and stop chemo for two weeks. Then when I retested it was better.  :) However the following test showed I have a high ANC/immune system. So they upped my chemo, then the next month my counts are high AGAIN! Soooo up the chemo went again. This has left me moody, tired and nauseous. I sure thought Maintainance was going to be the light at the end of the tunnel. It is still filled with sooooooo many struggles, unknowns and worries. I pray I adjust and the next two years get easier! My counts did show I am still in remission! I am fighting like a girl and getting ready to start fundraising for my next walk for LLS!! Last year we raised over $45,000!!!!! My goal is $50,000 this year! I tell my parents all the time I wish I could end cancer!

Everyone's battle is different! This is just my fight!