ARA-C second round

Yesterday I went to CHLA for labs. I was really low on red blood cells. So... what was supposed to be a quick check-up ended up being all day. I was really tired and the red blood made me feel a lot better. Then when I got home I started my next four days of ARA-C chemotherapy. I also take an oral chemotherapy every night this round. I am planning on more rest until my next check up. XOXO

Bald is Beautiful!!

During this last phase of chemotherapy I have lost just about the last of my hair! Anyone that knows me knows my hair was amazing. My hair was to my waist and super thick. The good news is it grows back! My mom wanted to take some pictures to show me that I was just a beautiful as when I had hair. When she showed me the finished pictures I smiled. I told my mom "Why would anyone laugh at me with no hair?" It felt good to see the pretty pictures!

Getting close!

Second half of Delayed Intensification

I left to see the doctor early because I have a fever, cough and runny nose. Fevers are nothing to mess with while going thru chemo. The doctors gave me a strong dose of steroids and said I can continue on schedule for the second half of this phase. I will be starting the morning with a Lumbar Puncture and then a chemotherapy that takes 6 hours. It will be a looonnnng day!! Once I get home I will take a chemotherapy by mouth every night and another my mom and dad will inject into my central line every night. I am really tired all the time but doing good! Thank you all for your prayers!

House Calls Magazine

A little exciting news!

Check your mail. My nurse Dawn and I are featured in House Calls magazine. It comes in the local residents mail. Let me know if you would like an autograph. XOXO

The Fiesta

My school has a carnival every year called The Fiesta. I having been feeling pretty crumby. I just love going to the fiesta though! I couldn't  walk because I have been having really bad bone pain. But my daddy had an idea to fix that! I just went in my lovely Bugaboo :). I had so much fun and ate tons of food (the steroids make me REALLY hungry) after some Tylenol and a fever check, off we went! Thanks Daddy!!

Last day of steroids

This has been a long week of medication. I am having a few side effect from my medication. Bone pain, stomach pain, extreme hunger, (nothing taste good) nausea, weakness in my muscles and really tired to name a few. I pretty much have slept the whole week. I think my body is working hard. I started to lose my hair again. The doctor said that I would probably lose the rest of my hair during DI. Tomorrow I go back to CHLA. I will keep you posted to what the second half of this phase looks like. 

Light the Night Condors

The Bakersfield Condors are going to help promote our Light the Night event as well as raise funds for our team independently.  Our game night will be October 18^th, an opening night! The LA Kings will be here, the top fund raising teams will play broomball on the ice, we will have the opportunity to go on the ice during the first intermission and share our message, form a fan tunnel on the ice as the players enter the rink, as well as other opportunities.

CLICK FOR TICKETS

Each team will receive up to 50% of their ticket sales if as a whole LLS sells 200 plus tickets. When you purchase ticket please indicate it is for Team Presley Hart!

LET’S GO CONDORS!!!!

If you choose to attend the hockey game make sure to order your Team Presley shirts by the  September 30, 2014 and we will get them in for the hockey game! 

DI ~ Day 15

Thursday the 4th I had another treatment. I actually met a new friend. A girl named Zoe. We had fun playing together and painting. I also start another round of steroids. BOOO!! My numbers still remain great but I am wiped out. My mom went to Amelia's boutique grand opening and said I had a lot of supporters. Everyday I get more excited for my walk. I am also participating in a California Childhood Leukemia Research group. It is to help find out why kids get Leukemia. It was really hard to spit a whole tube full of  saliva. Lol. I hope someday we find out why and no one ever has to go through this.

Before treatment 

During treatment in the infusion center

After treatment

My morning meds

The research 

I went to SCHOOL!

I was missing my friends and the yummy food at school! I begged my mom to let me go. She said my numbers (immune system) are good and I could go to school with her supervision. I have spent so many days in bed lately... I was so happy I got to go somewhere. I saw a lot of friends from last year. I did some art projects, lead prayer, played on the playground and ate in the cafeteria! I love my school and miss everyone. Thursday I start chemo and steroids again. That means more days in bed. Check back and I will keep you posted on how strong I am!

Light The Night Shirts

Here are the Team Presley Hart Shirts! The women's run small, I ordered a size up. Men's and kids are true to size. If you want yours sooner just email me. The links to the order for are just above the shirt. You can pay me in cash or check when they arrive. The cost will be $20 per shirt and $15 per baby onesie!   Orders close October 10th, 2014 

Thank you everyone XOXO

Baby Onesies

http://www.customink.com/signup/a3df9s1z

Men's and kids Light the Night shirts

http://www.customink.com/signup/a283ux0e

Womens Light the Night shirts

http://www.customink.com/signup/a28d1jri

Sign up ends October 10th