LTN 2015 schedule!

What: Light the Night Walk
Where: Cal State Bakersfield Amphitheater off of Stockdale Hwy
When: Saturday, November 7th, 2015
Time: Registration opens at 4:00 PM
Free parking in lots B&C, Disabled Parking in lot D
No Pets Allowed
Bring lawn chairs and blankets

Light the Night Schedule of Events:
4PM- Registration Opens
4PM-6:30- Festivities begin including: live music, photo booth, food, team photos, Survivor Café, Kids Zone and more!
5:00- Acknowledgement of Top Teams, Sponsors and Bright Lights
5:45- Remembrance Ceremony
6:30- Main program followed by the walk and fireworks display

We look forward to seeing you there!

The countdown!

This Saturday is the Light the Night Walk!!! Very excited to see everyone! All of your support is truly amazing. I can't tell you all how special everyone of you are to me and my family! 

Halloween just passed and I was Pocahontas. I love dress up and candy so this was a awesome holiday. Next Thusday I return to CHLA for another round of IV chemotherapy. I am SUPER happy about this... Why? Because I only have 7 more "IV" treatments left after this one and 2 more Lumbar Punctures to put chemotherapy into my spinal fluid. I do still take pill therapy at home everyday too. 

However this seems so close and so exciting!

My very last chemo will be.....

I have been trucking along in therapy. My hair has grown back to my shoulders. I have some cute curls that are from the chemotherapy. I started Kindergarten this year! I love my new friends and school! I still go thru sooo many challenges from treatment. I have neuropathy in my feet and hands, jaw pain, fevers, weakness, a sour stomach everyday, and many more things. All in all I have to say I'm doing good! I am still in remission and traveling back and forth to Children's Hospital of Los Angeles for therapy. I recently got really exciting news... My very last day of therapy will be June 26th!! Finally a light at the end of the tunnel! Even after therapy ends I still have a long road of recovery. Thank God I have a great place to get treated at. Here are some pictures of what I have been up to 😊

The counts are all that matters!

I started month 5 of maintenance on Friday. It's the same medication for the next two years... month after month... just boring Leukemia to DEATH over here. In this phase my "counts" (for those who don't know what my counts are... They are my CBC labs that tell the doctors what immune system is doing as well as my red and white cells.) have not been great. First they are to low so, I had to stay at home and stop chemo for two weeks. Then when I retested it was better.  :) However the following test showed I have a high ANC/immune system. So they upped my chemo, then the next month my counts are high AGAIN! Soooo up the chemo went again. This has left me moody, tired and nauseous. I sure thought Maintainance was going to be the light at the end of the tunnel. It is still filled with sooooooo many struggles, unknowns and worries. I pray I adjust and the next two years get easier! My counts did show I am still in remission! I am fighting like a girl and getting ready to start fundraising for my next walk for LLS!! Last year we raised over $45,000!!!!! My goal is $50,000 this year! I tell my parents all the time I wish I could end cancer!

Everyone's battle is different! This is just my fight!

One year ago!

A year ago today I was diagnosed with Leukemia ALL Pre-B. It was a big change and shock for me and my entire family. We have had ups, down, trails and triumphs over this last year! My road with Leukemia is far from over...but ohhhh how far we have came. I am still in remission! Thank you Jesus. I am still on chemo and my hair is growing back with vengeance!  I am in a phase of treatment called maintenance. It's 30 day cycles the first day I go to the hospital get an IV put in and either get Chemotherapy or anesthesia for spinal chemo. Then I start 5 days of heavy steroids (that make me CrAzY and HUNGRY) with oral chemotherapy every night. I have mastered the art of taking medication and getting constant pokes! I look forward to when my therapy is over. For now I am thankful for remission. I will keep you all posted on my progress! 

Here are some pictures to catch you up!

Some are from Easter, hospital visits, the Daddy Daughter Dance and hanging with my big brother Dante!

Went to the beach!

Ooooohhhh yes and fed a giraffe at the Santa Barbrara Zoo!

February is for Love

I have been going to school as much as possible. I am still really tired from my medicine. Hasn't been as easygoing as we thought. Hoping that I adjust to the chemotherapy as we go (or this is going to be a loooong 2 years) This month it took 2 pokes to get my IV. I didn't really like that. However I did make it to school  for my Valentine's Day party! Some exciting news is I also lost two teeth 😘😁 I'll keep you posted on my progress!

January is a new year

I'm a cover girl!

What an amazing day!!! I saw that I am on a cover of a magazine!