When the unknown strikes

I have to say life has been pretty good! 

I finally feel pretty good most of the time! AMEN! I still get a rash that really itches from chemo. I also have a cough that just won't go away...ugh. All in all I am happy and enjoy days going to school and  playing with friends.

Then...

Right before Easter break I started to lose my hair again. On no, I was so worried. It is finally past my shoulders. Clumps in the tub...clumps in the bed...clumps in the brush. It was everywhere. It has slowed down a bit for now. My mom and dad asked my doctor what is going on and she said it sometimes happens. However usually it only thins! What a relief!! For now I am hanging on to my hair! 

On the positive side, I am going on my Make A Wish trip this month!!!

DisneyWorld here I come.

On the downside I have two treatments this month :(

But...

Only one in May and One in June!

THEN I AM DONE!

 Wow it feels great to say/write that!

New pictures to share!

4 more cycles to go!

The count down begins!

 I am so excited that I can actually count how many treatment cycles I have left on one hand!! This last Friday I had my second to last LP (lumbar puncture) where the doctors sedate me and put Methotrexate in my spinal fluid to help prevent a relapse in my central nervous system. The procedure went smooth. Then I saw Dr. Baskin, she said my counts are great! So now I am on a 5 day course of high dose steroids. The steroids are one of the hardest parts of my treatment. 

This last month I had a few trips to the ER to get IV antibiotics from high fevers. Then a trip to CHLA because of a positive bacterial infection test. (that ended up being a contaminated sample) This last month was a lot more pokes than usual.

So my Make a Wish has been granted!! I am headed to Disney World in April!! I can't hardly wait to see all the princesses! I love them all. Big things are happening around here. When my treatment is all done I am having a big party on the beach to celebrate. Two years of chemo hasn't been easy, but I have been fighting my way thru it. Thank you everyone that prays for me. 

Now for some fun....

Here are some current pictures!

Last Fridays Treatment

Daddy Daughter Dance


Last month trip to CHLA
New years with my Friend
Me as a Bon Bon in the nutcracker
Ballet practice
My brother and I
In the hospital again
My Kodi